Free Hit Counters
Free Hit Counters Smile, life is beautiful
  1. Do you have to follow any special diet?

    No, just healthy eating and little to no caffeine.

  2. hi! (: I am 15 years old girl from Finland. My English sucks and I am sorry about it. I have CHD too but isn't HLHS. I born with complete AVB, PDA and enlarged heart. I had my first surgery when I was only few hours old. I really want meet new people with CHD all over the world. so I want to ask you - how is you and your heart today? How many surgeries you had, do you need more in the future? thanks ♥

    Hello! Greetings from Philadelphia!!!
    My heart is doing great! I am healthy and active. I had my first surgery in the first days of my life. I had 3 open heart surgeries and for the future all is looking wonderful! Hopefully no more surgeries! I am glad you contacted me and I hope you stay well!!
    All the best
    Chelsea xox

  3. hello, I came across your youtube channel & checked out a few vids. I also have HLHS & thought your vids were pretty nice & informational to others, Im glad to see theres someone else out there living the 'usual' every day life like any other person. Stay strong, & blessed.

    Thank you so much! It really means a lot.

     Chelsea 

    XOXO

  4. Chelsea Hello, I am a mother of a baby with hypoplastic left ventricle, has 1 year and two surgeries, he lacks the Fontan, I am very confused because I was told that there were people over 14 years with this read you heart and gives me great hope, we are Argentina. wanted to know how much is your saturation? Do you have a mild form of hypoplasia? Do you have other cardiac complications? such as valve problems or pulmonary arteries, Thanks for sharing your experiences.

    Hello!

    It’s so great to hear from you, I will be turning 21 in two months and finishing my 3rd year of college! There is hope. My sats have always been in the 95%- 98%. I have no other cardiac problems,  No hypoplasia either.

    Chelsea

    xox

  5. Hi Chelsea - congratulations on all of your successes & accomplishments. I was wondering if you had trouble socializing with other children when you were younger. Because you were slower than them, did they treat you very differently? Did you have a harder time getting along with others? Do you remeber whether or not you had anxiety or anxious behaviours? Were you socialized with lots of other children at a young age despite HLHS?

    I never had any trouble socializing with children my age. I don’t quite no what you mean by slower. If you are talking mentally; I am not slower. But if you are talking about endurance and physically, I kept up just fine. Nothing ever stopped me. I am just like every other young adult, HLHS is apart of me. It is not me. It has never affected me socially. I am was just like every other child except I had a scar. My parents brought me every where as a child, I was never left home with a babysitter, every grocery store trip, to vacation to holiday event.

    Chelsea

    xox

  6. Hi, My daughter, Amberlynn & I just saw your YouTube Do's & Don'ts video, it was great! Thank you so much for sharing it. Amberlynn is 10 & also has HLHS. She loves living life to the fullest & we encourage it, but I have to admit, sometimes she makes me nervous. She loves sports & her favorite thing to drink is water! :) I told her we could join tumbler to chat with you. She's in bed now but is looking forward to connecting with you soon. Thanks again! You're an inspiration!

    I am so so glad you enjoyed the videos!! I would love to chat with you and Amberlynn sometime, I inboxed you my email address, please feel free to email anytime with questions you or Amberlynn have!!

    Chelsea 

    xox

  7. You are a blessing from God

    Chelsea, I just wanted to say what a blessing you are. My daughter (also named Chelsea) was just told that her baby (my grandson) has HLHS and as you might think we were scared to death. It has been 6 hours since we got the news and the lord directed me to your youTube video. What an encouragement it was. She will be going to Philly to deliver and now we have much more hope for the future. god Bless you young lady you are a BLESSING!
    Gerry

    Gerry, This just made my day, I love how The Lord works! So amazing, I also had all of my open heart surgeries at Chop! If there is anything you need or questions I can answer please feel free to message me:) Xoxo Chelsea
  8. Chelsea my wife and just found out that our unborn baby girl has HLHS. When we first heard the news, we thought it was a death sentence. The first doctors didn't give us much hope. We have spent every day researching and getting second opinions. We found a doctor who is willing to fight for our baby and we will soon be moving out to Seattle to get the surgeries to save our baby's life! I came across your videos online and you have given us a shot of hope! Thank you so much!! Brad and Christi

    Brad & Christi,
    I am so glad that I could provide some help for you two! If you ever have questions please feel free to message me:)
    I wish you two all the best and I will keep you two in my prayers and thoughts while you are going through this time:)
    Xoxo
    Chelsea

  9. Hi Chelsea!! I saw your link in the Heart Mamas group on facebook! My little guy has HRHS and has had 2 surgeries so far! It really is fantastic to see you doing so well.

    Thank you so much!!
    Xoxo
    Chelsea

  10. Hello! My little brother is 17 and has HLHS since birth. He had the the first surgery shortly after he was born and the last two surgeries combined into one at 9 months old. I want to get him a sweatshirt for Christmas about being stronger because of his heart, but he wants nothing to do with it. He hates that he has half a heart and can't be a "normal" kid. Is there anything I can do to help him realize how special and wonderfully made he is?

    Hi!

    I love your idea of getting him a sweatshirt but I can understand where he wants nothing to do with it. When I was growing up, I absolutely hated my scar, because that was the only thing keeping me from being just like everyone else. Over time though I learned to appreciate my scar and to see it as an obstacle I have overcome. I know how your brother feels and I wouldn’t want  a  ”heart problem” always attached at the end of my name. I wanted to define myself, not have my Hlhs define me… I think that is what your brother is trying to do, because I was his age when I was dealing with this. I think I found an awesome solution though to your christmas gift idea. I think you should get him a Nike sweatshirt a lot of them have great sayings on them and they are very stylish. My favorite one is the LeBron “He Endures” - On the back of the sweatshirt it says he who conquers endures. Which is so awesome, here is the link to it:  http://store.nike.com/us/en_us/?l=shop,pdp,ctr-inline/cid-1/pid-568542/pgid-670592

    I think you have an awesome idea and I know that we will love anything you get him! And you can tell him being normal is very overrated. There is no need to be normal when being yourself is the best kind of beauty.

    Philippians 4:13

    New King James Version (NKJV)

    13 I can do all things through Christ  who strengthens me.


    I hope this helped! If you need anything else, please do not hesitate to message me!

    Chelsea 

    xoxo

  11. My wife and I have a 5 year old daughter with HLHS named Sasha

    Hello Chelsea,

    Sasha was born on Feb. 19th, 2007 in Albuquerque, NM.  We didn’t know she had a heart defect when she was born, all I knew was the nurses were going crazy with her.  She was rushed from the womens hospital she was born at and transferred to the big hospital in Albuq. Presbyterian Hospital where we met a cardiologist that looked at her.  He gave us 2 options - to take her home and maybe she would last a couple of weeks or put her on the waiting list for a heart transplant.  My wife and I were devistated and neither option sounded like an option.  A few hours later, the doctor came back to us and said she would be a good candidate for a series of 3 surgeries: Norwood, Glenn and finally the Fontan which she has had all three.  She had some complications along the way but pushed thru them with her strong will (and red hair) ha ha.  She has had many cath’s in fact we are going back for a cath Feb. 2013.  They couldn’t do the repairs here in Albuq. so we have been going to Rady’s Childrens Hospital in San Diego California.  We have flown there about 9 times already, it’s expensive and we don’t get a lot of insurance help, but we love her soo much, we do what ever it takes to get her there and back home.  Her miracle surgeon is Dr. Lamberti and here miracle cath doctor is Dr. Moore at Rady’s.  You are an inspiration for her and my wife and I.  Thankyou for sharing your story, you too are very strong and a go getter.  We would like to share Sasha’s website with you so you can get to know her:  www.babysasha.org

    Thanks a bunch, Bill and Carmella

  12. Hello Chelsea. I love your YouTube videos!! My son is just about 2 1/2 and has had all three repairs in Boston. Dylan is such a little firecracker and still desnt know his limits haha. I love how you stress that basically it's up to them ( and us as parents) how well your going to do by the life style you choose. Thankfully we also have a 4 yr old daughter that he has to keep up with lol.... My question is, if any, what type of limits did your parents set for you as a child?

    Hello! 

    I love hearing that he is little firecracker, haha that is great!  There were no limits, I think reminders would be the best way to explain my childhood. There was no you can’t do this or that, it went more like. Remember to stop when your tired, remember to drink water. Never did I hear.. ” you cannot do_____” It just wasn’t in their vocabulary.

    xoxo

    Chelsea

  13. Hi Chelsea, me name is Lorena I also have a 4 year old boy with HLHS, I just want to tell you how encouraging is your video, I dont know how found it, but I'm so Happy to find your page, you are a very inspiring girl, and beautiful as well. God does not make mistakes !

    Hello Lorena! 

    Thank you so much! I wish the best for you and your family, especially your little boy! :)

    xoxo

    Chelsea

  14. Chelsea, I can't even tell you how comforting it is to see you and have you answer these questions. Our son is 7 and doing GREAT, but I always have that fear of the unknown. My question for you, is do you feel like you are always in the running for a heart transplant? OR do you feel like the Norwood will sustain you? I went for a few years in denial thinking Jack won't need a transplant. Thank you again for helping all us parents ask questions. ~Lisa

    Hello Lisa,
    I have never been in the running for a heart transplant. It has never come up or have I ever thank God been sick enough. The doctors said I wouldn’t need one. I don’t feel or act like anything is wrong with me. This is how I see it, I have never lived with a full heart so I am use to what I have. Just like the saying you can’t miss what you never had. I don’t know what it feels like to have a full pumping heart and I really don’t ever think about what it would be like. I am so blessed with what I have. If jack is happy with himself and who he is then don’t let him think there is something wrong with him because he entering the age where it gets hard. I remember around this age is where I started realizing I had a scar and no one else did. Not that this is a problem but a learning lesson. It took me years to learn that being different is ok but I learned it on my own and it has been extremely valuable to me especially now growing into a young adult and I started learning this right around your sons age!!!
    Hope this helps!
    Chelsea
    Xoxo

  15. Hi Chelsea,

    My name is Brian and I am the father of the most amazing 13 month old girl living with HLHS. Zoe has had her Glenn and doing really well right now, if not for the scar one would never know she had only half a heart. I am so happy to have come across your blog because you give me hope for the future for the love of my life. My wife and I have been through stuff that I never would have thought imaginable. 24/7 - 7 days a week and weeks turned into months but I would do it all over again. Life is beautiful, keep smiling Chelsea your a beautiful person and thanks for the help. 

    Hello Brian!

    Thank you so so much! I am so glad Zoe(what a beautiful name:)) is doing well! I am glad you posted and I loved hearing from you! I pray she continues with good health!

    Chelsea

    xoxo

About me

Hello, My name is Chelsea. I am 20 years young and I have Hypo- plastic left heart syndrome. I was born with just 2 chambers of my heart and the left side is so small, my mother has described it as the size of a pea or smaller! I go to college and I study Marketing and Fashion Industry Management. One day I want to become a Fashion Coordinator for a Haute Couture designer. I made this tumblr so I can post my daily life and for other people all over the world that are either dealing with HLHS or have family/friends that have HLHS to come to a place and to just talk. I have a question link on the page where you can ask me anything you want! Enjoy!